Survival depends on many different factors. It depends on your individual condition, type of neuroendocrine tumour (NET), treatment and level of fitness. So no one can tell you exactly how long you will live.
These are general statistics based on large groups of people. Remember, they can’t tell you what will happen in your individual case.
Your doctor can give you more information about your own outlook (prognosis).
About these statistics
The terms 1 year survival and 5 year survival don't mean that you will only live for 1 or 5 years.
The Office for National Statistics (ONS) and researchers collect information. They watch what happens to people with cancer in the years after their diagnosis. 5 years is a common time point to measure survival. But some people live much longer than this.
5 year survival is the number of people who have not died from their cancer within 5 years after diagnosis.
Where this information comes from
In the UK, no statistics are available for the survival of the different types of stomach NETs. The statistics presented here are international and might not accurately reflect UK statistics. They are gathered from various sources, including the opinions and experience of the experts who check our information.
We have information about the overall survival of people with stomach cancer. Remember to click back to return to the neuroendocrine section.
Survival for all types of stomach NET
1 year survival
The 1 year survival statistics below are for all types of stomach NETs in the UK.
- Around 75 out of 100 people (around 75%) survive for 1 year after their diagnosis
These statistics are from a UK study, which included 749 people diagnosed with stomach NETs between 2013 and 2015.
Impact of neuroendocrine morphology on cancer outcomes and stage at diagnosis: a UK nationwide cohort study 2013–2015
T Genus and others
British Journal of Cancer (2019) Volume 121, pages 966–972
5 year survival
There are no UK-wide 5 year survival statistics available for all types of stomach NETs. The 5 year survival statistics below are from a European study. Please be aware that due to differences in health care systems, data collection and the population, these figures may not be a true picture of survival in the UK.
- Almost 60 out of 100 people (almost 60%) survive for 5 years after their diagnosis
These statistics are from a European study which included 1400 people diagnosed with stomach NETs across Europe, between 1995 and 2002.
The 5 year survival statistics are for people diagnosed between 2000 and 2002. The paper does not state how many patients this would be. But it should be large enough to create a reliable idea of survival in Europe.
Rare neuroendocrine tumours: Results of the surveillance of rare cancers in Europe project
J Maartaen Van de Zwan and others
European Journal of Cancer Volume 49, Issue 11 July 2013, Pages 2565-2578
These 5 year survival statistics are for relative survival. Relative survival takes into account that some people will die of causes other than cancer. This gives a more accurate picture of cancer survival.
Types of stomach NET
There are 3 types of stomach NETs:
- type 1 (this is the most common type)
- type 2
- type 3
Survival for type 1 stomach NETs
Almost 100 out of 100 people (almost 100%) with a type 1 stomach neuroendocrine tumour survive for 5 years or more.
Survival for type 2 stomach NETs
Between 60 and 75 out of 100 people (between 60 and 75%) with a type 2 stomach neuroendocrine tumour survive for 5 years or more.
Survival for type 3 stomach NETs
75 out of 100 people (75%) who have a type 3 stomach NET, and have had extensive surgery to remove the tumour, survive for 5 years or more.
Stomach NETs that have spread to a distant part of the body can be more difficult to treat.
These survival statistics come from various review papers about stomach NETs, including:
Gastric Neuroendcrine Tumours
DA Crosby and others
Digestive Surgery, 2012 Volume 29 , Issue 4, Pages 331-48
What affects survival?
Survival depends on many factors. It depends on the stage and grade of the NET when it was diagnosed. The stage describes the size of the tumour and whether it has spread. The grade means how abnormal the cells look under a microscope.
Another factor is how well you are overall.