What are neuroendocrine tumours (NETs)?

Neuroendocrine tumours (NETs) are rare tumours that start in neuroendocrine cells.

Getting diagnosed

Find out about seeing your GP, referral to a specialist and the tests you might have to diagnose a NET.

Treatment

Treatment depends on the type of NET you have, where the tumour is, its size and whether it has spread (the stage).

Carcinoid syndrome

Carcinoid syndrome is a group of symptoms that some people get when they have a neuroendocrine tumour (NET). These symptoms happen when the tumour makes large amounts of hormones.

Lung neuroendocrine tumours (NETs)

Lung NETs are rare cancers that start in the neuroendocrine cells of the lung. Some types of lung NETs are called carcinoid tumours.

Stomach neuroendocrine tumours (NETs)

Stomach NETs are rare tumours starting in the neuroendocrine cells of the stomach.

Small bowel neuroendocrine tumours (NETs)

Small bowel NETs are rare. These tumours start in the neuroendocrine cells of the small bowel.

Large bowel and rectal neuroendocrine tumours

Large bowel and rectal NETs are rare cancers that start in the neuroendocrine cells. Some types of NETs are called carcinoid tumours.

Insulinoma

Insulinomas are rare tumours that start in the insulin making cells of the pancreas. These cells are called pancreatic islet cells.

Gastrinoma

Gastrinomas are rare NETs that start in cells that make the hormone gastrin.

Somatostatinoma

Somatostatinomas are rare NETs that start in the pancreas or the small bowel (duodenum).

VIPoma

VIPomas usually start in the pancreas. They can also rarely start in other organs of the body such as the bowel, lungs and liver.

Glucagonoma

Glucagonomas are rare NETs that start in the glucagon making cells of the pancreas.

Merkel cell skin cancer

Find out about Merkel cell carcinoma. This is a rare type of neuroendocrine tumour.

Living with NETs

Get practical and emotional support to help you cope with a neuroendocrine tumour.

Last reviewed: 
28 May 2019

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