Stomach neuroendocrine tumours (NETs)

Stomach (gastric) neuroendocrine tumours (NETs) are rare tumours that can start in the stomach. They are also called neuroendocrine neoplasms (NENs). They are sometimes called neuroendocrine carcinomas (NECs) depending on how the cells look under a microscope. There are 3 types of stomach NETs. The main treatment is surgery.

You might hear some stomach NETs called carcinoid tumours.

What are stomach neuroendocrine tumours?

Stomach neuroendocrine tumours (NETs) are rare stomach tumours that start in the neuroendocrine cells of the stomach.

Symptoms of stomach NETs

Many people with a stomach NET do not have any symptoms. Doctors often diagnose a stomach NET when looking for something else.

Getting diagnosed

Most people start by seeing their GP. They may arrange for you to have tests such as an endoscopy, scans and blood tests. Doctors often diagnose a stomach NET when looking for something else.

Types and grades of stomach NETs

There are 3 types of stomach neuroendocrine tumours. The grade gives doctors an idea of how quickly a cancer might grow and whether it will spread.

Treatment by type of stomach NET

The treatment you have for a stomach neuroendocrine tumour (NET) depends on a number of things. This includes the type of NET and whether it has spread.

Treatment for stomach NETs that have spread

There are a number of different treatment options if you have a stomach NET that has spread. The best treatment for you depends on where in your body the NET has spread to.

Follow up for stomach NETs

You have regular appointments with your doctor or nurse after treatment for your stomach NET finishes. This is called follow up.

Research into stomach NETs

Researchers are looking at the biology of neuroendocrine tumours. And are trying to improve the diagnosis and treatment of stomach NETs.

Survival

Survival depends on many different factors. It depends on your type of neuroendocrine tumour, treatment and level of fitness. Find out about survival for the different types of stomach NETs.

Living with NETs

Get practical and emotional support to help you cope with a neuroendocrine tumour.

Last reviewed: 
09 Jun 2021
Next review due: 
09 Jun 2024