Find organisations, support groups, videos and books to help you cope with non-Hodgkin lymphoma.
Cancer Research UK
Cancer Research UK is the largest cancer research organisation in the world outside the USA. We are the European leader in the development of new anti cancer drugs. We fund research on all aspects of the disease from its causes, to treatment and prevention, education and psychological support for patients.
We are also committed to producing high quality information for people affected by cancer, health professionals and the general public. We do this through the About Cancer pages on our website.
Cancer Chat is our free online discussion forum for people affected by cancer. It is a safe space to talk to other people in similar situations, and find information and support.
If you have a question about cancer, you can contact our team of specialist cancer information nurses. Call free on 0808 800 4040, 9am to 5pm, Monday to Friday. To talk in your preferred language, ask for our interpreting service. Or you can send us a question online.
We also have news, health awareness leaflets and other resources on cancer.
Lymphoma support and resources
Lymphoma Action (previously known as Lymphoma Association) gives emotional support and medical information on all aspects of Hodgkin and non-Hodgkin lymphoma. Their services are free to people with lymphoma and their family and friends.
They run local support groups for people with lymphoma around the country. They also have a buddy scheme for putting patients in touch with each other by phone. And they produce leaflets and a newsletter.
The Lymphoma Action online forum is available 24 hours a day.
Tel: 0808 808 5555 (10 am to 3 pm Monday to Friday)
Bloodwise funds research into leukaemia, lymphoma and myeloma. It also provides patient information booklets and leaflets that you can download or order from their website.
Bloodwise used to be called Leukaemia and Lymphoma Research.
Support line: 0808 2080 888 (Monday, Tuesday, Thursday and Friday 10am - 4pm, Wednesday from 10am - 1pm )
The African Caribbean Leukaemia Trust (ACLT) aims to increase the number of bone marrow and stem cells donors for African, African Caribbean and mixed parentage people in the UK who need a transplant.
Tel: 020 3757 7700
This UK group gives information and support to people affected by Waldenstrom's Macroglobulinaemia. Their volunteers can answer questions about their experience of specific treatments.
This UK group is supported by the International Waldenstrom's Macroglobulinaemia Foundation (IWMF).
The US National Cancer Institute (NCI) website includes comprehensive guidance on treatment for non-Hodgkin lymphoma in adults and children.
This US website gives evidence based, detailed information on all aspects of lymphoma. The language used is very technical.
Anthony Nolan runs one of the largest bone marrow donor databases in the world. It has regional centres which are listed on its website. It also provides information about being a stem cell or bone marrow donor.
It is looking for people in good health aged 16–30 to join the Anthony Nolan register. In particular, they need more young men and people from black and minority ethnic communities to sign up.
General enquiries: 0303 303 0303
The National Blood Service runs the blood donation scheme and organises the supply of blood products. They also run the British Bone Marrow Register (BBMR).
Tel : 0300 123 23 23
DKMS used to be called Delete Blood Cancer. It aims to provide a matching donor for every blood cancer patient in need of a blood stem cell donation. It has offices in the UK, Germany, Chile, Poland and the United States. The register now has more than 300,000 people in the UK.
People between the ages of 18 to 55 and are in general good health can join the register.
Phone: 020 8747 5620
General support and resources
Teenage Cancer Trust is a national charity providing specialist units, expert staff, support events, education and information for 13-24 year old’s diagnosed with cancer, and their friends and families.
Teenage Cancer Trust also work closely with healthcare professionals and researchers to lead the way on developing cancer care for teenagers and young adults.
Teenage Cancer Trust
93 Newman Street
Phone: 020 7612 0370
Macmillan Cancer Support
This charity gives practical, medical and financial support to people with cancer.
Macmillan Cancer Support produce a wide range of booklets, factsheets, leaflets and CDs about cancer and its treatment, in various languages. They also provide information for teenagers and young adults with cancer.
Their helplines give advice on cancer and benefits.They also have an online community group for people aged 16 to 24 who are living with cancer.
Tel: 0808 808 0000
Book about cancer
V Speechley and M Rosenfield
Get the facts about cancer and cancer treatments, set out in question and answer format. This book includes advice on diet, exercise, sex and relationships, holidays, employment and money matters.
Bloomsbury Publishing PLC, 2001
This book covers treatment, side effects and many different types of cancer.
Elizabeth M Adler
Johns Hopkins University Press, 2016
This US book was written by a doctor diagnosed with lymphoma. It covers the emotional, practical, physical and medical aspects of lymphoma. Some aspects may not apply to UK patients.
Lance Armstrong Foundation
Hodder & Stoughton, 2011
An inspiring collection of personal stories about cancer and survivorship. It covers all aspects of cancer.
Recommend a book
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Booklets and factsheets
Lymphoma Action publishes many booklets and information sheets, which can be ordered or downloaded for free from their website. They cover low and high grade non-Hodgkin lymphomas and much more.
Macmillan Cancer Support
You can download (for free) or order many factsheets and leaflets about various aspects of living with cancer and its treatment.
- Cancer treatment and fertility ̶ ̶ Information for men
- Cancer treatment and fertility ̶̶ Information for women
- Controlling cancer pain
- Coping with advanced cancer
- Coping with hair loss
- Healthy eating and cancer
- Lost for words ̶̶ how to talk to someone with cancer
- Sexuality and cancer - Information for men
- Sexuality and cancer - Information for women
- Talking about your cancer
- Understanding cancer research trials (clinical trials)
- Understanding chemotherapy
- Understanding non-Hodgkin lymphoma
- Understanding radiotherapy
- Understanding donor stem cell (allogeneic) transplants
Videos of people's stories
Hear what it's like to live with and beyond cancer, from people who have shared their personal stories on film.
Healthtalk has an online library of interviews with people who have lived for 5 years or more after a cancer diagnosis. See what they say about lifestyle choices, physical effects, work, family and more.
Find local cancer information and support
NHS Choices helps you to find local cancer information and support.