Somatostatinomas are rare neuroendocrine tumours (NETs) that make the hormone somatostatin. Most somatostatinomas start in the pancreas and the small bowel (duodenum).

They are a type of functioning NET of the pancreas.

What are somatostatinomas?

Somatostatinomas are rare NETs that start in neuroendocrine cells that make the hormone somatostatin. 

Symptoms of somatostatinoma

Symptoms of somatostatinoma include high blood sugar levels (diabetes), tummy pain and diarrhoea.

Diagnosing somatostatinoma

You have some tests to diagnose a somatostatinoma. This might include blood tests and an endoscopy.

Stages and grades of pancreatic NETs

The stage and grade of a pancreatic NET helps your doctor decide which treatment you need.

Treatment for Somatostatinoma

The treatment you have depends on a number of things such as where the somatostatinoma is, its size and whether it has spread.

Research and clinical trials for pancreatic NETs

Researchers are looking at improving the diagnosis, treatment and quality of life of people with pancreatic NETs.

Follow up for somatostatinoma

You have follow up appointments to check how you are and see if you have any problems or worries.

Risks and causes of pancreatic NETs

There are some factors that increase your risk of developing a pancreatic NET. This includes some medical conditions.

Living with NETs

Get practical and emotional support to help you cope with a neuroendocrine tumour.

Survival for somatostatinoma

Survival for somatostatinoma depends on different factors. So no one can tell you exactly how long you will live. 

Last reviewed: 
13 Jul 2021
Next review due: 
13 Jul 2024
Json LD: 
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