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Insulinomas are rare neuroendocrine tumours (NETs) that start in the insulin making cells of the pancreas. They are a type of functioning NETs of the pancreas.

What are insulinomas?

Insulinomas are rare NETs that start in the insulin making cells of the pancreas. They make the hormone insulin which controls the amount of sugar (glucose) in your body.

Symptoms of insulinoma

The symptoms of insulinoma can be vague and are usually caused by changes in the blood sugar levels.

Risks and causes of pancreatic NETs

There are some factors that increase your risk of developing a pancreatic NET. This includes some medical conditions.

Getting diagnosed

You  have some tests to diagnose an insulinoma. This might include a fasting test.

Stages and grades of pancreatic NETs

The stage and grade of a pancreatic NET helps your doctor decide which treatment you need.


The treatment you have depends on a number of things such as where the insulinoma is, its size and whether it has spread.

Research and clinical trials

Researchers are looking at improving the diagnosis, treatment and quality of life of people with pancreatic NETs.

Follow up

You have follow up appointments to check how you are and see if you have any problems or worries.

Living with NETs

Get practical and emotional support to help you cope with a neuroendocrine tumour.


Survival for insulinomas depends on many factors. So no one can tell you exactly how long you will live.

Last reviewed: 
10 Jul 2019
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