Seeing your GP when you have symptoms of CML

See your doctor if you notice a change that isn't normal for you. Or if you have any of the possible signs and symptoms of chronic leukaemia.

Even if you're worrying about what the symptom might be, you shouldn't delay seeing your GP. Your worry is unlikely to go away if you don't make an appointment. It might not be leukaemia. But if it is, the earlier it is picked up the more likely it is that it can be treated successfully. You won't be wasting your doctor's time.

Many people with chronic myeloid leukaemia (CML) won't have any symptoms at all. You might see your GP because they have noticed an abnormality in a routine blood test for something else and you don't have any other symptoms. 

Getting the most out of your GP appointment

You may have your appointment in person, over the telephone or as a video call. However you speak to your GP it can be difficult to remember everything you want to say. These tips will help you get the most out of your appointment.

Tips

• Write down your symptoms including when they started, when they happen and how often you have them.

• Write down anything that makes them worse or better.

• If you would prefer to only see a male doctor or female doctor, ask when you book the appointment - the receptionist will tell you if it is possible.

• Tell your GP if you are worried about cancer.

• Tell them if you have any family history of cancer.

• Have a friend or relative with you for support - they could also ask questions and take notes to help you remember what the GP says.

• Ask the GP to explain anything you don’t understand.

• Ask the GP to write things down for you if you think it might help - if you have a telephone or video appointment ask for the information to be left at reception for you to pick up.

This short video goes over how to get the most out of your phone and digital appointments with your doctor. The video lasts 1 minute and 43 seconds.

What happens during your GP appointment?

Your doctor needs to build up a picture of what's going on. So they will ask you some questions. These include:

• what symptoms you have

• when you get them

• whether anything makes them better or worse

They will ask you about your general health and any other medical conditions you have. 

During the appointment your doctor may want to examine you. You can ask for someone else to be in the room with you if you want, to act as a chaperone. A chaperone is a trained health professional such as a nurse. A friend or relative can also stay with you for support. They can be with you during the examination or throughout the appointment.

Tests your GP might do

When examining you, your GP might check any areas of swelling or areas that have been painful.

Your GP might also arrange for you to have a blood test. This is to check the levels of white and red blood cells and platelets. You might have this test at your GP practice or at your local hospital.

Depending on the results of your examination and the blood test, the GP may refer you to a specialist. 

Ask your GP to explain if they don’t think you need a referral or any tests. They might ask you to come back in a week or two if your symptoms continue. Go back if they change or get worse.

Questions you might want to ask your GP

• Do I need to see a specialist? Is it urgent?
• When will I see them?
• Where will I see them?
• Will I find out about my appointments by post or telephone?
• Do I need tests? What will they involve?
• How long should I expect to wait?
• Where can I find out more about tests?
• Do I have to do anything in preparation for this test?
• When will I get the results and who will tell me?

Your GP might not be able to answer all of your questions. They will tell you what they can at this point. Not knowing is difficult to cope with and can make you anxious.

Speaking to a friend or relative about how you feel might help.

If your GP doesn't think you need any tests or a referral

• Can you explain why I don’t need to have tests or see a specialist?
• Is there anything I can do to help myself?
• Do I need to see you again?
• Who do I contact if my symptoms continue or get worse, especially during the night or at weekends?

What happens next?

Make sure you know what happens next. Make another appointment if your symptoms don’t clear up, or if they change or get worse.

How to find a GP

If you don’t have a GP, you can find a doctor’s surgery in your local area by going to:

Making an appointment

To make an appointment you:

• can telephone your GP surgery

• can book an appointment online through your GP surgery website (if they have one)

• may be able to use the NHS App

• may be able to go into the GP surgery and make an appointment in person

If it's difficult to get through to the GP surgery by phone try calling at a different time of the day. Or try calling on a different day. It could be particularly busy in the mornings or on a Monday. Although it can be frustrating you should keep trying. Some GP surgeries offer to call you back if you are in a telephone queue.  

You might be able to go to your GP surgery to book an appointment. But not all surgeries offer this service. It may help to see if your GP surgery has a website - this will explain the best way to get an appointment. 

You don’t have to tell the receptionist why you want to see the doctor, although sometimes it might help to explain your situation.

The reception team are trained in offering you an appointment with the most suitable professional at the right time. Depending on your symptoms, you might see another healthcare professional such as a nurse or physician associate first.

You may be asked to attend in person, especially if your GP needs to examine you. Or the receptionist may offer you a telephone or video appointment first. If your GP needs to see you after this they will ask you to make another appointment. The receptionist will give you a date and time for this. 

Accept a booked appointment even if you think it’s a long time to wait. You could ask about cancellations if you're able to get to the surgery at short notice. Check that the surgery has the right details for you, including your telephone number and email.  

Contact the GP surgery again if your symptoms change or get worse.