There are many organisations, support groups, books, videos and other resources to help you cope with vaginal cancer and its treatment.
Cancer Research UK information and support
Cancer Research UK is the largest cancer research organisation in the world outside the USA. We fund research on all aspects of cancer from its causes to prevention and treatment.
We are committed to producing high quality information for people affected by cancer. As well as looking at the information on this website you can call our nurse freephone helpline on 0808 800 4040. They are available from Monday to Friday, 9am to 5pm. Or you can send us a question online.
Cancer Chat is our online forum where you can share experiences.
Specific women's support organisations
Jo's Trust provides information about cervical cancer and a confidential medical enquiry service. They also support women with vaginal cancer. They have a website bulletin board where you can exchange experiences and information with others who have cervical cancer.
Helpline: 0808 802 8000
Tel: 0203 096 8100
The Eve Appeal is a UK national charity raising awareness, and funding research into the five gynaecological cancers - womb, ovarian, cervical, vulval and vaginal. They also provide a gynae cancer information and support service called Ask Eve.
Ask Eve telephone: 0808 802 0019
Ask Eve email: firstname.lastname@example.org
General enquiries: telephone: 020 7605 0100 and email: email@example.com
This organisation provides information about many women's health issues. For a minimum donation of £10 to cover costs, they can give personalised email advice about your reproductive, gynaecological or sexual health. Produces booklets on a range of subjects including hormone replacement therapy, menopause, hysterectomy and ovarian cysts.
Spracklen House, East wing
A patient led group that promotes understanding about pelvic radiation disease. Pelvic radiation disease is a late effect of radiotherapy treatment. They support patients and campaign for more research and better treatment for this condition.
Tel: 01372 744338
The RCOG works to improve women's health care across the world. They work with a range of partners both in the UK and globally to improve the standard of care delivered to women, encourage the study of obstetrics and gynaecology (O&G), and advance the science and practice of O&G.
General support organisations
The Sexual Advice Association provide lists of local specialist practitioners, as well as fact sheets on problems such as erectile dysfunction (impotence).
Volunteer beauty therapists provide skincare and make up workshops for women undergoing cancer treatment. All guests are provided with a goodie bag. Set up by the cosmetics industry, this charity has been running for 12 years and workshops are held in 50 locations across the UK.
Tel: 01372 747 500
Macmillan Cancer Support is a charity that gives practical, medical and financial support to people with cancer in the UK. Its helpline gives guidance on cancer and advice on benefits. It also publishes booklets about cancer and treatments. Information is available in other languages.
Freephone: 0808 808 00 00 (7 days a week, 8am to 8pm)
Contact email form
Switchboard provides an information, support and referral service for lesbians, gay men and bisexual and trans people - and anyone considering issues around their sexuality or gender identity. Their helpline is open every day between 10am and 10pm. They also offer a chat and email service.
PO Box 7324
Helpline: 0300 330 0630
The National Cancer Institute (NCI) is the US organisation for cancer research. It has information about all types of cancer.
A national charity offering information and support to anyone affected by lymphoedema. It has local support groups, a helpline and a website. It also produces a range of information including factsheets about lymphoedema and its treatment, videos about self management techniques for lymphoedema, and a newsletter.
Telephone: 020 7351 4480
Maggie’s is a national charity with centres across the UK. They offer care and support to people affected by cancer. Each centre is beside an NHS cancer hospital and is run by specialist staff.
You can join a support group, take part in weekly sessions like relaxation and stress management, or learn about nutrition and health. You can also visit just to have a cup of tea and a friendly chat.
Phone: 0300 123 1801
Books about vaginal cancer
S Haslett and others
Beaconsfield Pubs Ltd, 2012
A practical guide with information about the different types of hysterectomy operation. Tells you how to prepare for your operation and what to expect when you are recovering.
Dr Ian Banks
J H Haynes & Co Ltd, 2009
A practical guide to all aspects of women's health, written for men to help them understand and support the women in their lives.
M Heffernan and M Quinn
Michelle Anderson Publishing, 2003
An American book that deals with all aspects of gynaecological cancer. Gives concise information alongside women's own stories about their experiences.
A Bloch and others
American Cancer Society, 2010
An American book but most of the information is relevant to the UK. It covers issues such as preventing weight loss and coping with dehydration, fatigue, and infection. It also discusses eating problems and digestion issues, such as swallowing problems, feeling sick and dealing with mouth sores. Focuses on survivorship and how to eat well after treatment.
S Kydd and D Rowett
Big Think Media, 2006
A responsible guide featuring personal stories and expert voices. Intimacy after Cancer takes an in-depth look at how women respond to, deal with, and overcome barriers to intimacy after a life-changing cancer diagnosis.
Booklets and factsheets
- Understanding radiotherapy (also on CD)
- Pelvic radiotherapy in women - possible late effects (also on CD)
- Pelvic radiotherapy in women - side effects during treatment
- Understanding lymphoedema
- Life after cancer treatment
- Coping with advanced cancer (also on audiotape)
- Controlling the symptoms of cancer
- Lost for words – how to talk to someone with cancer
- How are you feeling? Coping with the emotional effects of cancer
- Sexuality and cancer
- Coping with fatigue (also on audiotape and CD)
- Talking to children and teenagers when an adult has cancer (also on CD)
- Talking about your cancer (also on audiotape and CD)
A range of downloadable factsheets and information relating to cancer and treatment.
Videos of people's stories
Find out about the experience of living with and beyond cancer by seeing and hearing people share their personal stories on film. Healthtalk’s researchers created a library of interviews with people who have survived for 5 years or more after a cancer diagnosis.
Find out what people said about issues such as lifestyle choices, physical effects and the impact on work and family.
Find local cancer support and information services
NHS Choices has a service that tells you about local information and support.