Resources and organisations
There are organisations to help you cope with a transplant and its side effects.
Cancer Research UK information and support
Cancer Research UK is the largest cancer research organisation in the world outside the USA. We fund research on all aspects of cancer from its causes to prevention and treatment.
We are committed to producing high quality information for people affected by cancer. As well as looking at the information on this website you can call our nurse freephone helpline on 0808 800 4040. They are available from Monday to Friday, 9am to 5pm. Or you can send them a question online.
Cancer Chat is our online forum where you can share experiences.
Transplant support organisations
Anthony Nolan
Anthony Nolan runs one of the largest bone marrow donor databases in the world. It has regional centres which are listed on its website. It also provides information about being a stem cell or bone marrow donor.
It is looking for people in good health aged 16–30 to join the Anthony Nolan register. In particular, they need more young men and people from black and minority ethnic communities to sign up.
General enquiries: 0303 303 0303, open Monday to Friday 9am to 5pm
Email: patientinfo@anthonynolan.org
Blood Cancer UK
Blood Cancer UK funds research into leukaemia, lymphoma and myeloma. It also provides patient information booklets and leaflets that you can download or order from their website.
Support line: 0808 2080 888
Email address: support@bloodcancer.org.uk
DKMS
DKMS used to be called Delete Blood Cancer. It aims to provide a matching donor for every blood cancer patient in need of a blood stem cell donation. It has offices in the UK, Germany, Chile, Poland, India, Africa and the United States.
People between the ages of 18 to 55 and are in general good health can join the register.
Email: info@dkms.org.uk
Phone: 020 8747 5620
Leukaemia Care
Leukaemia Care is a national blood cancer support charity, committed to ensuring that anyone affected by blood cancer receives the right information, advice and support.
It provides a range of support services to patients and their carers, including information, support groups, patient and carer conferences, and nurse education days.
Freephone helpline: 08088 010 444
Chat via WhatsApp on 07500068065
Lymphoma Action
Lymphoma Action provides information and support for people affected by lymphoma. They provide a helpline service. They also offer online support meetings and a buddy service for putting patients in touch with each other. They run educational events and webinars.
They have a website which includes a database of lymphoma clinical trials.
Telephone for support or information: 0808 808 5555 (10 am to 3 pm Monday to Friday)
Telephone for general enquires: 01296 619 400
Email: information@lymphoma-action.org.uk
Myeloma UK
Myeloma UK is dedicated to funding research, providing information and supporting those with myeloma. They produce booklets and videos. Booklets are available on their website, or they will send you an information pack. They can provide a list of myeloma support groups in the UK. They have an online discussion forum and myeloma TV.
Helpline: 0800 980 3332 (Freephone Mon to Fri, 9.00am to 5.00pm)
Email: askthenurse@myeloma.org.uk
The National Blood Service
The National Blood Service runs the blood donation scheme and organises the supply of blood products. They also run the British Bone Marrow Register. People aged between 17 and 40 can join the register. Let the staff know you are interested in being a stem cell or bone marrow donor when you next donate blood.
Phone the number below or look at the website for more information about becoming a blood stem cell or bone marrow donor.
Tel: 0300 123 2323
