There are resources available to help you cope with thyroid cancer and its treatment. These include organisations, support groups, books, and videos.
Cancer Research UK information and support
Cancer Research UK is the largest cancer research organisation in the world outside the USA. We fund research on all aspects of cancer from its causes to prevention and treatment.
We are committed to producing high quality information for people affected by cancer. As well as looking at the information on this website you can call our nurse freephone helpline on 0808 800 4040. They are available from Monday to Friday, 9am to 5pm. Or you can send them a question online.
Cancer Chat is our online forum where you can share experiences.
Thyroid cancer support organisations
A support network for people with thyroid disease. The British Thyroid Foundation's staff, medical professionals, volunteers and people with thyroid disorders, work together to provide support and information based on medical evidence and personal experience.
Tel: 01423 810 093
Butterfly Thyroid Cancer Trust is the first national charity in the UK dedicated solely to the support of patients with thyroid cancer. You can talk to others with thyroid cancer via their helpline, email and telephone. They also arrange for buddies to help through the treatment process.
Tel: 01207 545 469
Hypopara UK offers support for people with hypoparathyroidism. This can be caused by thyroid surgery and can make it difficult for your body to maintain a normal level of calcium in the blood. They can provide information and have an online forum.
Tel: 01342 316 315
The Association for Multiple Endocrine Neoplasia Disorders (AMEND) is a patient group which provides information and support about multiple endocrine neoplasia (MEN) and endocrine tumours. They can provide support to patients with medullary thyroid cancer who have the gene fault associated with MEN2.
General support organisations
Macmillan Cancer Support is a charity that gives practical, medical and financial support to people with cancer in the UK. Its helpline gives guidance on cancer and advice on benefits. It also publishes booklets about cancer and treatments. Information is available in other languages.
Freephone: 0808 808 00 00 (7 days a week, 8am to 8pm)
Contact email form
Books about thyroid cancer
Douglas Van Nostrand and others
Keystone Press, 2019
This US book covers all aspects of thyroid cancer and its treatment, written by medical experts for the lay person. Some information is not applicable for a UK audience. There's a chapter containing patients' commentaries about living with thyroid cancer.
The Thyroid Cancer Book (2nd edition)
M S Rosenthal
Trafford publishing, 2006
This book covers the causes of thyroid cancer, different treatments, emotional and psychological issues and complementary therapies. The author whose had thyroid cancer is Canadian, so some information isn't relevant for the UK. The book is easy to read and comprehensive.
Butterfly Cottage Publishing, 2018
A year long diary of Susan, a UK thyroid cancer patient. It's shows the issues she faced being diagnosed with cancer and having treatment. It includes her personal thoughts and feelings before diagnosis, through her treatment and once it ended. It gives detailed information about what it's like to have radioactive iodine treatment.
Outskirts Press 2019
This book is 93 stories from 74 authors who all share the same incurable cancer, either as the patient or as the caregiver. The book helps the reader understand about living with cancer.
Booklets and factsheets
Many of these are also available on audio CD.
- Understanding thyroid cancer
- Understanding chemotherapy
- Understanding cancer research trials (clinical trials)
- Understanding radiotherapy
- Coping with hair loss
- Diet and cancer
- Coping with advanced cancer
- Caring for someone with advanced cancer
- Dying with cancer
- Controlling cancer pain
- Controlling the symptoms of cancer
- Coping with fatigue
- Cancer and complementary therapies
- Sexuality and cancer
- The emotional effects of cancer
- Talking to children when an adult has cancer
- Talking about your cancer
- Lost for words: how to talk to someone with cancer
- Life after cancer treatment
Videos of people's stories
healthtalk.org provides free, reliable information about health issues, by sharing people's real life experiences. The cancer section of the website contains video and audio clips of people with some types of cancer.
There is a section for:
- cancer that affects adults
- cancer in young people
- taking part in clinical trials
Find local cancer support and information services
NHS Choices has a service that tells you about local information and support.