Resources and support

GIST Cancer UK is a network of people with GIST and their relatives. Everyone involved has experience of GIST (gastrointestinal stromal tumours). The website has brief information about GIST and its treatment and a list of links. The organisation runs phone and email support networks and a forum.

Support line: 0300 400 0000

Email:  admin@gistcancer.org.uk

This commercial company makes waterproof coverings for dressings or casts on the arms or legs. This means you can go swimming, take a bath or shower without worrying. They can also be used to cover PICC lines. Ask your specialist or nurse about getting one on the NHS or you can buy direct from the company. 

Telephone: 0870 041 0150

Email: enquires@autonomed.co.uk

Changing Faces provide support and information for people who have any form of facial disfigurement including disfigurement caused by cancer. They also provide a skin camouflage service for people in England and Scotland. Trained volunteers teach people how to apply specialist cover creams.

Phone: 0300 0120 275 (support and advice line)
Head office email: info@changingfaces.org.uk

The contact details for the skin camouflage service are:

Phone: 0300 0120 276
Email: skincam@changingfaces.org.uk

Let's Face It provides support for people with facial disfigurement including those who have, or had, cancer.

Macmillan Cancer Support is a charity that gives practical, medical and financial support to people with cancer in the UK. Its helpline gives guidance on cancer and advice on benefits. It also publishes booklets about cancer and treatments. Information is available in other languages.

Freephone: 0808 808 00 00 (7 days a week, 8am to 8pm)
Contact email form

Teenage Cancer Trust is a national charity providing specialist units, expert staff, support events, education and information for 13-24 year olds diagnosed with cancer, and their friends and families.

Teenage Cancer Trust also work closely with healthcare professionals and researchers to lead the way on developing cancer care for teenagers and young adults.

Teenage Cancer Trust
The Place
175 High Holborn
London
WC1V 7AA

Phone: 020 7612 0370
Email: hello@teenagecancertrust.org

N Keene, W Hobbie and K Ruccione
Childhood cancer guides, 2012
ISBN 978-1-941089-10-1

This is a US book, so some of the information may not apply (future medical insurance for example). But it is the only book of its kind and has helpful information on coping with emotional and practical aspects of life after cancer.

Sarcoma UK has a variety of patient guides to download from their website.

For general health advice and information.