Resources and organisations for mesothelioma
There are many resources available to help you cope with mesothelioma and its treatment.
Cancer Research UK information and support
Cancer Research UK is the largest cancer research organisation in the world outside the USA. We fund research on all aspects of cancer from its causes to prevention and treatment.
We are committed to producing high quality information for people affected by cancer. As well as looking at the information on this website you can call our nurse freephone helpline on 0808 800 4040. They are available from Monday to Friday, 9am to 5pm. Or you can send them a question online.
Cancer Chat is our online forum where you can share experiences.
Support organisations
These organisations give you support through all stages of mesothelioma and its treatment.
Asthma and Lung UK (previously The British Lung Foundation) provide information on all types of lung conditions. They run support groups across the country and produce a newsletter and other publications. They raise funds for research into lung disease.
Helpline: 0300 222 5800
The British Thoracic Society is a professional body for lung specialists. Its website has information about mesothelioma and lung cancer. It also has guidelines for managing mesothelioma.
The material is written for medical professionals. You might find the tone blunt and technical at times.
Great Britain's independent regulator for work-related health, safety and illness. The website includes guidance on asbestos use in the workplace and the laws on asbestos.
Tel: 0300 003 1747 (Monday to Friday, 8.30am to 5pm)
This organisation raises money for research into mesothelioma treatment. It also raises awareness of mesothelioma. And supports activities for people with mesothelioma and their carers.
Tel: 0114 274 4420
Email: info@junehancockfund.org
Macmillan Cancer Support is a charity that gives practical, medical and financial support to people with cancer in the UK. Its helpline gives guidance on cancer and advice on benefits. It also publishes booklets about cancer and treatments. Information is available in other languages.
Freephone: 0808 808 00 00 (7 days a week, 8am to 8pm)
Contact email form
Mesothelioma UK supports all UK mesothelioma patients and their families.
Their information line team can help you find information, support and help for benefits or compensation.
They also offer a call back service from a clinical nurse specialist. They can talk to you about any aspect of your mesothelioma.
Phone: 0800 169 2409 (Monday to Friday, 8.30am to 4.30pm)
Email: support@mesothelioma.uk.com
The National Cancer Institute (NCI) is the US organisation for cancer research. It has information about all types of cancer.
The Roy Castle Lung Cancer Foundation is a UK charity dedicated to defeating lung cancer. It funds research into early diagnosis and provides support to patients and their families. It also helps people to stop smoking and provides anti smoking education materials for children and young people.
People affected by lung cancer can share experiences through the foundation's network of support groups and the online discussion forum: Talk and Share.
Lung Cancer Helpline: 0333 323 7200
Publications
British Asbestos Newsletter
A quarterly newsletter with updates on all aspects of asbestos, both legal and medical. The newsletter is no longer being published, but you can look at past newsletters on the website.
Mesothelioma Handbook
Download the handbook from the June Hancock Mesothelioma Research Fund for free, or buy a hard copy.
Healthtalk.org
Provides free, reliable information about health issues including mental health, by sharing people's real-life experiences.
Find local cancer information and support near you
There are organisations and support in your local area that you can access. You can ask your specialist nurse or doctor for more information about cancer services near you.
England
The NHS website has a service that tells you about local information and support in England.
Scotland
NHS Inform gives information about illness, treatments and NHS services for people in Scotland.
Wales
NHS 111 Wales gives health advice and information for people living in Wales.
Northern Ireland
The Northern Ireland Cancer Network (NICaN) website tells you where to find cancer information and support in Northern Ireland.
