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Coping with neuroblastoma

It is extremely distressing to find out that your child has cancer. It can raise many different emotions. It is very normal to feel angry, sad, upset and shocked. It is such a lot to take in. You are likely to worry about whether they will get the right treatment, what will happen, and how you will all cope. 

If you have other children most parents and grandparents worry about them as well. Practical help and support is something people nearly always need, for example, shopping or help with looking after other children in the family.

It is essential that parents and other close family also have support. Talking to friends and other members of the family can help you deal with your feelings.

Quotes from parents - take deep breaths

Organisations that can help

Neuroblastoma UK is run by the parents and close relatives of children with neuroblastoma.

The Children's Cancer and Leukaemia Group (CCLG) produces booklets for parents and brothers and sisters of children with cancer that you may find helpful. You can download these from their website.

The Future Fertility Trust is run by a team of doctors, researchers and tissue bank specialists from the University of Oxford and the Oxford University Hospitals NHS Foundation Trust.

It aims to help children and young people at risk of infertility due to illness or treatment. 

Phone: 01865 220 076 (24 hour answer service)
Email: orh-tr.futurefertilitytrust@nhs.net

Other sources of help

Some organisations can put you in touch with a cancer support group. We have information about books, leaflets and other resources about cancer treatment.

Cancer Research UK nurses

For support and information, you can call the Cancer Research UK information nurses on freephone 0808 800 4040, from 9am to 5pm, Monday to Friday. They can give advice about who can help you and what kind of support is available.
Last reviewed: 
25 Feb 2021
Next review due: 
25 Feb 2024
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