CUP resources and organisations
There are lots of organisations, support groups, books, videos and other resources to help you cope with cancer of unknown primary (CUP) and its treatment.
Cancer Research UK information and support
Cancer Research UK is the largest cancer research organisation in the world outside the USA. We fund research on all aspects of cancer from its causes to prevention and treatment.
We are committed to producing high quality information for people affected by cancer. As well as looking at the information on this website you can call our nurse freephone helpline on 0808 800 4040. They are available from Monday to Friday, 9am to 5pm. Or you can send them a question online.
Cancer Chat is our online forum where you can share experiences.
CUP and general support organisations
You can click on the names below to find information about other organisations. These organisations and websites help and support people affected by cancer and its treatment.
Some organisation have booklets and audiobooks that you can order or download. Some also provide information in other languages and easy read booklets.
This is an alliance of 90 organisations working to address inequality in funding for rare cancers and improving outcomes for patients.
Email : info@cancer52.org.uk
The CUP Foundation provides support and information for people with unknown primary cancer and their carers. The CUP Foundation also aims to raise awareness and undertake, promote and support research.
CUP Foundation,
The Fold,
Lower End,
Daglingworth,
Cirencester
GL7 7AH
Macmillan Cancer Support is a charity that gives practical, medical and financial support to people with cancer in the UK. Its helpline gives guidance on cancer and advice on benefits. It also publishes booklets about cancer and treatments. Information is available in other languages.
Freephone: 0808 808 00 00 (7 days a week, 8am to 8pm)
Contact email form
Marie Curie runs 9 centres (hospices) throughout the UK. And a nationwide Marie Curie nursing service, providing care for patients in their own homes throughout the day or night, free of charge.
Head Office:
89, Albert Embankment
London
SE1 7TP
Support line: 0800 090 2309. For emotional support and practical advice about terminal illness, including for family and friends. The support line is open 8am - 6pm Monday to Friday and 11am - 5pm on Saturday.
Maggie’s is a national charity with centres across the UK. They offer care and support to people affected by cancer. Each centre is beside an NHS cancer hospital and is run by specialist staff.
You can join a support group, take part in weekly sessions like relaxation and stress management, or learn about nutrition and health. You can also visit just to have a cup of tea and a friendly chat.
Phone: 0300 123 1801
Email: enquiries@maggies.org
The US National Cancer Institute website has a comprehensive section about cancer of unknown primary.
Books
Carcinoma of Unknown Primary (CUP), Occult Primary Malignancy - Clinical Data for Patients, Families, and Physicians
National Cancer Institute, USA
Progressive Management, 2011
Information and practical advice about carcinoma of unknown primary (CUP) from the National Cancer Institute in the US. Only available as a Kindle edition.
The book includes information about signs, symptoms, treatment options, clinical trials and outlook. It also includes a complete glossary of technical medical terms and current references. The book starts with basic information and advances to more detailed patient information, and then information for doctors.
General books about cancer
You can also find a list of books about cancer, treatment and living with cancer on our general reading list. These books cover many aspects of cancer and its treatment.
Healthtalk.org
Provides free, reliable information about health issues including mental health, by sharing people's real-life experiences.
Find local cancer information and support near you
There are organisations and support in your local area that you can access. You can ask your specialist nurse or doctor for more information about cancer services near you.
England
NHS Choices has a service that tells you about local information and support in England.
Scotland
NHS Inform gives information about illness, treatments and NHS services for people in Scotland.
Wales
NHS 111 Wales gives health advice and information for people living in Wales.
Northern Ireland
Cancer Focus Northern Ireland have a cancer information helpline and resource centre. They provide public and professional education, rehabilitation programmes and support groups for patients and relatives.
Cancer nurse helpline: 0800 783 3339 Monday - Friday 9am to 1pm
Email: nurseline@cancerfocusni.org
Recommending a book
Contact us if you would like to recommend a book that you have found helpful. It helps us if you include the title, author, publisher's name and year, and ISBN number.
