Bone cancer resources and support organisations

This organisation provides information, support and counselling for people with primary bone cancer and their families. They also have a financial assistance grants service. They promote research into the causes and treatment of primary bone cancer, in particular osteosarcoma and Ewing sarcoma. 

Telephone: 0113 258 5934
Support and information line: Freephone 0800 111 4855 Monday to Friday 9am to 5pm

The Chordoma Foundation is an international online support group that has a message board where you can get in touch with other people with chordoma.

The Royal Orthopaedic Hospital is a leading centre for orthopaedic oncology. The team specialises in the diagnosis and treatment of benign and malignant tumours of bone and soft tissues.

Royal Orthopaedic Hospital
Bristol Road South
Northfield
Birmingham
B31 2AP

Cancer services phone: 0121 685 4049 or 0121 685 4152

The Scottish Sarcoma Network (SSN) aims to ensure equity of care for all patients in Scotland with sarcoma. The website lists treatment centres for bone cancer and soft tissue sarcoma in Scotland.

Treatment centres are in:

• Aberdeen
• Dundee
• Edinburgh
• Glasgow
• Inverness

The RNOH is a designated centre for the care and treatment of people with bone and soft tissue cancers.

The Royal National Orthopaedic Hospital
Brockley Hill
Stanmore
Middlesex
HA7 4LP

Phone: 020 3947 0100

ASTRiiD stands for ‘Available Skills for Training, Refreshing, Improvement, Innovation and Development’.

ASTRiiD is a not for profit organisation connecting businesses with people who have long term health problems, including cancer, but who still have skills to offer employers. A person can register their skills and experiences along with how much time they might be able to give to a potential employer. This might be a number of days a week or even just a few hours a month.

A company registers and highlights the skills and experiences that they are looking for in order to complete some work. ASTRiiD then compares these two registrations to see if there is match. If there is a good match then ASTRiiD will introduce one side to the other.

Email: hello@astriid.org

Disability Rights UK provides an information and advice service and campaigns for disabled people's rights. 

They also provide a Just Can't Wait card and radar keys that give access to toilets throughout the UK for people who might need to use a toilet in a hurry. They also have several helplines providing information and advice.

General enquires phone: 0330 995 0400
Email: enquiries@disabilityrightsuk.org

Along with a comic book line, Jumo Health produces other products such as podcasts, videos, and games. They are all designed to help children, their parents and carers learn more about their health condition.

Shine Cancer Support

Shine is a charity working to create a community of young adults in their 20s, 30s and 40s who have experienced a cancer diagnosis. 

Shine has local peer support networks across the UK and runs a number of annual events including Shine Camp (a summer camping trip) and Shine Connect, a conference for young adults with cancer, their friends and family, and healthcare professionals.

Shine also runs workshops on topics such as working after cancer and managing anxiety and depression. 

Phone: 07804 479 413
Email: hi@shinecancersupport.org

The Children's Cancer and Leukaemia Group (CCLG) work to coordinate national and international clinical trials. They also provide information about cancer for children and their families.

Phone: 0333 050 7654
Email: info@cclg.org.uk

Macmillan Cancer Support is a charity that gives practical, medical and financial support to people with cancer in the UK. Its helpline gives guidance on cancer and advice on benefits. It also publishes booklets about cancer and treatments. Information is available in other languages.

Freephone: 0808 808 00 00 (7 days a week, 8am to 8pm)
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