Womb cancer resources and support organisations
There are support organisations and resources available for people living with womb cancer.
Cancer Research UK information and support
Cancer Research UK is the largest cancer research organisation in the world outside the USA. We fund research on all aspects of cancer from its causes to prevention and treatment.
We are committed to producing high quality information for people affected by cancer. As well as looking at the information on this website you can call our nurse freephone helpline on 0808 800 4040. They are available from Monday to Friday, 9am to 5pm. Or you can send them a question online.
Cancer Chat is our online forum where you can share experiences.
Womb cancer support organisations
Go Girls offer support to women with gynaecological cancers. They are also raising awareness and campaigning for better diagnosis and treatments.
44 The Ridgeway, Upwey, Dorset DT3 5QQ
Tel: 01305 255719
Email: hello@gogirlssupport.org
Peaches Womb Cancer Trust is a UK charity run by researchers, doctors, and nurses. Their aim is to preserve the health and improve the experience of those with or at risk of womb cancer and their families. They offer support, promote awareness and aim to fund research for womb cancer.
Email admin@peachestrust.org
The Eve Appeal is a UK national charity raising awareness, and funding research into the five gynaecological cancers - womb, ovarian, cervical, vulval and vaginal. They also provide a gynae cancer information and support service called Ask Eve.
Ask Eve telephone: 0808 802 0019
Ask Eve email: nurse@eveappeal.org.uk
General enquiries: telephone: 020 7605 0100 and email: office@eveappeal.org.uk
Set up in 2011, Womb Cancer Support UK aims to provide support and information to women diagnosed with womb cancer, and to raise awareness of the disease. They also have a Facebook page.
General support organisations
College of Sexual and Relationship Therapists (COSRT) provides information about what help and therapy is available for sexual difficulties.
Telephone: 020 8106 9635
Email: info@cosrt.org.uk
A national charity offering information and support to anyone affected by lymphoedema. It has local support groups, a helpline and a website. It also produces a range of information including factsheets about lymphoedema and its treatment, videos about self management techniques for lymphoedema, and a newsletter.
Telephone: 020 7351 4480
Email: admin@lsn.org.uk
This charity aims to provide information and support to people with Lynch syndrome and their families, and to raise awareness of this syndrome. They also provide support through their Facebook page Lynch Syndrome UK Online.
Macmillan Cancer Support is a charity that gives practical, medical and financial support to people with cancer in the UK. Its helpline gives guidance on cancer and advice on benefits. It also publishes booklets about cancer and treatments. Information is available in other languages.
Freephone: 0808 808 00 00 (7 days a week, 8am to 8pm)
Contact email form
The National Cancer Institute (NCI) is the US organisation for cancer research. It has information about all types of cancer.
A patient led group that promotes understanding about pelvic radiation disease. Pelvic radiation disease is a late effect of radiotherapy treatment. They support patients and campaign for more research and better treatment for this condition.
Email: info@prda.org.uk
The Sexual Advice Association provide lists of local specialist practitioners, as well as fact sheets on problems such as erectile dysfunction (impotence).
The website no longer has a helpline due to a lack of funding.
A charitable membership body of health care professionals with an interest in the care and support of people with lymphoedema. Their resources include a directory of lymphoedema specialist practitioners.
Tel: 01452 790 178
World Cancer Research Fund is a charity that provides information and advice about nutrition, physical activity and cancer. They also have a helpline run by dietitians.
Helpline: 0333 034 1988 (Tuesdays 12pm – 2pm and Thursdays 6pm to 8pm)
Email: helpline@wcrf.org
Books from libraries, bookshops or online booksellers
M Heffernan and M Quinn
Michelle Anderson Publishing, 2003
ISBN: 0855723327
An American book that deals with all aspects of gynaecological cancer. Gives concise information alongside women's own stories about their experiences.
S Haslett and others
Beaconsfield Pubs Ltd, 2012
ISBN 978-0906584620
A practical guide with information about the different types of hysterectomy operation. Tells you how to prepare for your operation and what to expect when you are recovering.
Suzie Hayman
Sheldon Press, 2002
ISBN 085969870X
A straightforward book dealing with the physical and emotional results of hysterectomy. It covers the operation and how to recover from it. Written without medical jargon.
Tara Parker Pope
Rodale, 2007
ISBN 978-1905744107
An American book aimed at helping to clear up some of the confusion around HRT.
Dr Ian Banks
J H Haynes & Co Ltd, 2009
ISBN 978-1844258505
A practical guide to all aspects of women's health, written for men to help them understand and support the women in their lives.
Booklets and factsheets from other organisations
Many of these are also available as an audio book.
Coping with advanced cancer
Managing cancer pain
Managing the symptoms of cancer
Healthy eating and cancer
Talking about cancer
Managing the bladder late effects of pelvic radiotherapy
Managing the bowel late effects of pelvic radiotherapy
Cancer and your sex life
Talking with someone who has cancer
Talking to children and teenagers when an adult has cancer
Understanding womb (endometrial) cancer
Understanding chemotherapy
Understanding radiotherapy
Chemotherapy
Clinical trials
Radiotherapy
Your operation and anaesthetic
If you would like to recommend a book
Please contact us if you would like to recommend a book that you have found helpful. It helps us if you include the title, author, publisher's name and year, and ISBN number.
